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How much activity is recommended?

Each family needs to select the appropriate types and levels of activity that suit their own individual needs and circumstances.

Participate in InterRett / MECP2 Duplication Research

Through InterRett we collect information on individuals with Rett syndrome on a global level. If you are a participant you can complete your questionnaire here.

News & Events

High Tea for Rett Syndome at Caversham House

Thanks for everyone who have contributed to and participated in this wonderful event to raise much needed funds to support Rett Syndrome research!

News & Events

The Silent Angel

Taylor is a remarkable young woman with Rett Syndrome who is leading an active country life with the support of her family and the local community.

ATOMIC Ears Study

We are looking for children to take part in an important study that will assess a new treatment designed to prevent ongoing ear infections in kids having grommet surgery.

Melody Study

The Kids Research Institute Australia is looking for healthy babies (born from 35 weeks of pregnancy onwards) to take part in an important study evaluating a new medication that may help prevent Respiratory Syncytial Virus (RSV) disease.

Pertussis (Whooping Cough)

Whooping Cough Study in Young Adults could lead to an effective “stand alone” vaccine for Australians

Research

The social impacts of mining on local communities in Australia

Mining developments are being required to consider how they affect local communities and implement strategies to minimise negative impacts they may be causing

Research

School-based promotion of mental health and wellbeing to address bullying

The complexity of an issue such as school bullying and how this is best addressed as part of a systematic whole-school approach

Research

Multiancestry association study identifies new asthma risk loci that colocalize with immune-cell enhancer marks

We identified new asthma loci, found new associations at loci implicated in the comorbidity of asthma plus hay fever and confirmed nine known loci.