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Each family needs to select the appropriate types and levels of activity that suit their own individual needs and circumstances.
Through InterRett we collect information on individuals with Rett syndrome on a global level. If you are a participant you can complete your questionnaire here.

News & Events
High Tea for Rett Syndome at Caversham HouseThanks for everyone who have contributed to and participated in this wonderful event to raise much needed funds to support Rett Syndrome research!

News & Events
The Silent AngelTaylor is a remarkable young woman with Rett Syndrome who is leading an active country life with the support of her family and the local community.

We are looking for children to take part in an important study that will assess a new treatment designed to prevent ongoing ear infections in kids having grommet surgery.
The Kids Research Institute Australia is looking for healthy babies (born from 35 weeks of pregnancy onwards) to take part in an important study evaluating a new medication that may help prevent Respiratory Syncytial Virus (RSV) disease.
Whooping Cough Study in Young Adults could lead to an effective “stand alone” vaccine for Australians
Research
The social impacts of mining on local communities in AustraliaMining developments are being required to consider how they affect local communities and implement strategies to minimise negative impacts they may be causing
Research
School-based promotion of mental health and wellbeing to address bullyingThe complexity of an issue such as school bullying and how this is best addressed as part of a systematic whole-school approach
Research
Multiancestry association study identifies new asthma risk loci that colocalize with immune-cell enhancer marksWe identified new asthma loci, found new associations at loci implicated in the comorbidity of asthma plus hay fever and confirmed nine known loci.