Rett Syndrome Association of Australia and ANZACRett are two family-oriented organisations.
These resources include the best available evidence about the course of Rett syndrome and its management as well as practical information about famil…
The development of research partnerships is a priority for InterRett, with centres or clinicians with access to large numbers of patients with Rett s…
Our research covers a broad range of areas from the influence of mutation type on health outcomes to factors impacting on the lives of familes.
With the help of clinicians and families who have children with Rett syndrome, our research aims to improve understanding of Rett syndrome.
This evaluation explored the facilitators & barriers that influence Community Playgroup attendance, and the impact of attending playgroups on child d…
Support services to the Department of Education and Training and the AEDC State and Territory Coordinators and their support staff across Australia.
We aim to share our research findings with families so that they may better understand Rett syndrome and the future for their family.
Funded by the International Rett Syndrome Foundation, this international online database examines the clinical features and genetic characteristics.
The Australian Rett Syndrome Study is based at The Kids Research Institute Australia located in Subiaco, Western Australia. This study was establishe…