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Parental perspectives on the communication abilities of their daughters with Rett syndrome

We interviewed 17 parents with a daughter with Rett syndrome to gain their perspectives on how their daughter communicates and barriers.

Clinical severity and X-chromosome inactivation

For this study, we examined how Rett syndrome characteristics can be affected by X-inactivation for 2 of the common types of mutation - p.R168X and p.T158M.

Feeding experiences and growth status in a Rett syndrome population

We set out to describe the feeding difficulties and nutrition of girls with Rett syndrome and to examine what factors may be influencing their nutrition.

Longitudinal hand function in Rett syndrome

Therefore, we used video data to examine changes in hand function over time. We also investigated what other factors might influence these changes.

News & Events

Why it’s safe for kids to be at school

As Australia battles with COVID-19 outbreaks across all mainland states, there is a sense of familiar dread as major cities plunge into lockdown.

News & Events

Improving aftercare for young people at risk of suicide

A collaborative research team has secured federal funding to examine ways to improve the experience that children, adolescents and young people have when they present to hospital emergency departments for an acute mental health crisis with the aim of reducing the rate of youth suicide.

News & Events

Hon. Ben Wyatt to join board of The Kids Research Institute Australia

Former West Australian Treasurer, Hon Ben Wyatt, has accepted a position on the Board of WA’s leading medical research organisation, The Kids Research Institute Australia.

News & Events

Back to school: How to pack a healthy lunchbox to keep your child fuelled up for learning and play

Plenty of parents will tell you the daily lunchbox dilemma is one thing they did not miss during the summer holidays – which stretched even longer due to WA’s hard lockdown.

News & Events

New research reveals impact of little-known disorder

A new report released by The Kids Research Institute Australia in collaboration with Victoria University has revealed the significant social and emotional toll of Developmental Coordination Disorder (DCD).

News & Events

WA duo recognised as world’s most frequent autism research collaborators of the decade

Director of CliniKids, Professor Andrew Whitehouse, and Professor Murray Maybery, have been identified as the world’s most frequent autism research collaborators of the decade.