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Research
Transition to secondary school: Expectation versus experienceThis study investigated what young people in primary school reported being worried about with their impending move to secondary school, and how their...
Research
Is the effect of compulsory community treatmentWe investigated whether a reduction of preventable deaths from physical disorders was mediated by better access to specialized medical procedures.
Research
Meeting the needs of young people in hospitalFor hospital-based clinicians wishing to establish AYA services, how should they proceed and what might such services look like?
We have recently developed recommendations to support clinical practice for gastro-intestinal disorders including growth and scoliosis in Rett syndrome.
The ARSS has a Consumer Reference Group to ensure family representation and input into issues relating to the design, management and output of the study.
News & Events
HBF Run for a Reason 2014On Sunday May 25th, the 'I love someone with Rett syndrome' team participated in the annual HBF Run for a Reason.
News & Events
"You can't stop loving them" - a grandmother's story about her granddaughter who has Rett syndromeYou can't stop loving them: the gift of a grandchild can sometimes be painful, writes Wendy Macklin.
News & Events
The Rett Syndrome Journey: Pathways to FollowOur InterRett team visited Geelong, Australia to attend the first ever Rett Syndrome Association of Australia national conference.
Research
Risk factors for low receptive vocabulary abilities in the preschool and early school years in the longitudinal study of Australian childrenReceptive vocabulary development is a component of the human language system that emerges in the first year of life and is characterised by onward expansion...
Research
Common variation contributes to the genetic architecture of social communication traitsSocial communication difficulties represent an autistic trait that is highly heritable and persistent during the course of development.