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Participate in CDKL5 Research

Participate in our CDKL5 research to help advance research outcomes in the CDKL5 research field by our children's health specialist researchers.

News & Events

8th World Congress on Rett syndrome

Thank you to all guests and participants of this year's 8th World Congress on Rett syndrome, which was held from May 13-17th, 2016 in Kazan, Russia.

News & Events

New Study: Self Compassion for young people

Study: Self-Compassion for Young People with Type 1 Diabetes PARTICIPANTS NEEDED:  We are looking for young Australians 14-17 years with type 1

News & Events

For all of our budding young actors…

We are looking to create exciting new online resources for our families to utilise, which will include how-to videos, as well as patient perspective interviews.

People

Lisa McGivern

Lisa is a PhD student under the supervision of Prof. Helen Milroy AM and Dr. Alix Woolard from The Kids Research Institute Australia, and A/Prof. Jeneva Ohan from the University of Western Australia.