Search

Find out what our communities had to say about the draft Statement on Consumers and Community Involvement in Health and Medical Research.

This study explored relationships between speech and language abilities in girls with Rett syndrome and how they may be affected by the type of genetic mutation

We reviewed literature and RettNet to explore firsthand perspectives of gastrointestinal issues in Rett Syndrome, then developed recommendations with experts.

We interviewed 21 families with a daughter with Rett Syndrome about aspects of their daughters' lives that were satisfying or challenging to them.

This study measured changes in bone density over time using dual energy x-ray absorptiometry (DEXA). Lean tissue or muscle mass (LTM) was also measured.

Using a large sample size, we investigated the relationships between epilepsy and genotype, and the impact of medications used on seizure management.

We collected information on a monthly basis on the patterns of seizures and medications of 162 girls in the Australian Rett Syndrome study over a calendar year.

Publications from 2016 dating back to 1993 of AussieRett researchers, showing the research work into Rett syndrome and related disorders.

News & Events

We recently celebrated National Carers Week! A time to recognise and raise awareness for the more than 3 million Australians who provide care to a family member or a friend.

News & Events

We are excited to launch this first-of-its-kind Australian study, monitoring glucose levels in Australian children and adolescents who have tested positive to having one or more type 1 diabetes related antibodies but do not yet need treatment with insulin.