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Children with intellectual disability who underwent gastrostomy – a feeding tube placed into the stomach – had better overall health and fewer hospitalisations for all causes except acute respiratory illnesses, research led by The Kids Research Institute Australia has found.
Government early intervention services for children with intellectual disability (ID) in Western Australia have adopted the model of family-centred care.
Rates of Down syndrome (DS) show considerable international variation, but a systematic assessment of this variation is lacking.
The aim of this study was to examine trends of Down syndrome (DS) in relation to maternal age and termination of pregnancies (ToP) in 20 registries
This study describes the impact of having a sibling with Down syndrome or Rett syndrome using a questionnaire completed by parents.
Our vision is to increase awareness and improve outcomes for children with movement disorders and other neurodevelopmental conditions impacting on motor function.
We aim to ensure that high quality outcome measures are available to evaluate treatments and services for children with disability rigorously. We aim to translate our research into resources to support families, carers and clinicians.
The Sibling Project focuses on the wellbeing, relationships and needs of children, adolescents and emerging adults who have a sibling with a developmental disability.
Developmental and epileptic encephalopathy (DEE) conditions are rare, and most have a genetic cause.
One of the many reasons for setting up the International CDKL5 Disorder Database was to learn more about this condition.