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Government early intervention services for children with intellectual disability (ID) in Western Australia have adopted the model of family-centred care.
Rates of Down syndrome (DS) show considerable international variation, but a systematic assessment of this variation is lacking.
The aim of this study was to examine trends of Down syndrome (DS) in relation to maternal age and termination of pregnancies (ToP) in 20 registries
This study describes the impact of having a sibling with Down syndrome or Rett syndrome using a questionnaire completed by parents.
Principal Research Fellow
A project led by The Kids Research Institute Australia’s child disability team will seek to reduce potentially preventable hospitalisations and build health literacy for children and young people with intellectual disability.
Children with intellectual disability who underwent gastrostomy – a feeding tube placed into the stomach – had better overall health and fewer hospitalisations for all causes except acute respiratory illnesses, research led by The Kids Research Institute Australia has found.
A severe neurodevelopmental disorder mostly affecting girls.
About 2 per cent of children are estimated to have an intellectual disability. The cause of the condition is unknown in at least 50 per cent of cases.
Explored Youth with Neuromuscular Disorders perceptions of health, health behaviors and healthcare engagement