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Research
Common data elements to standardize genomics studies in cerebral palsyTo define clinical common data elements (CDEs) and a mandatory minimum data set (MDS) for genomic studies of cerebral palsy (CP). Method: Candidate data elements were collated following a review of the literature and existing CDEs.
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"Capturing the magic": identifying the active ingredients of a physical activity participation intervention for children and youth with disabilitiesThis study aimed to define the active ingredients of a participation-focused physical activity intervention for children and youth with disabilities.
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Comprehensive investigation of congenital anomalies in cerebral palsy: Protocol for a European-Australian population-based data linkage studyThe aim of this study is to generate new knowledge about the aetiologies of CP through a focused investigation into the role of congenital anomalies
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Clinical acceptability of the sense_assess© kids: Children and youth perspectivesThis study has demonstrated the acceptability of sense_assess© kids for the population for whom it is intended
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Change in residential remoteness during the first 5 years of life in an Australian cerebral palsy cohortTo determine if families of children with cerebral palsy living in Australia move to less remote areas between birth and 5 years.
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Prevalence of symptoms associated with respiratory illness in children and young people with cerebral palsyThis letter to the editor discusses the prevalence of symptoms associated with respiratory illness in children & young people with cerebral palsy.
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Fetal growth restriction and risk of cerebral palsy in singletons born after at least 35 weeks' gestationThe objective of the study was to improve the understanding of etiological paths to cerebral palsy (CP) that include fetal growth restriction by examining...
The aim of RESP-ACT is to reduce these children’s respiratory hospital admissions and visits to Emergency Department, and to help them and their families to have as the best possible quality of life.
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The cost of respiratory hospitalizations in children with cerebral palsyTo establish the burden of respiratory illness in cerebral palsy (CP) on the Western Australian health care system by quantifying the costs of respiratory hospitalizations in children with CP, compared with non-respiratory hospitalizations.
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Respiratory Health Inequities among Children and Young Adults with Cerebral Palsy in Aotearoa New Zealand: A Data Linkage StudyRespiratory disease is a leading cause of morbidity, mortality, and poor quality of life in children with cerebral palsy (CP). This study describes the prevalence of CP-related respiratory disease and the non-modifiable risk factors for respiratory-related hospital admissions in the Aotearoa New Zealand population.