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The aim of this study was to identify and prioritise the ten most important unanswered themes in rare disease research in Australia by integrating perspectives of key stakeholders, including people living with rare disease, parents/carers, health professionals, and rare disease community advocates.
Research Assistant
Jaida Penny is an Indigenous Research Assistant with the Early Neurodevelopment and Mental Health team at The Kids Research Institute Australia.
Playful parenting is engaging & connecting with your child through different forms of play. Play is an enjoyable activity that is freely entered into, with a goal of shared joy.
Secure attachments help children build resilience, self-worth, emotion regulation skills and healthy relationships.
To investigate developmental trajectories in early childhood and predictors of class assignment.
This study explored whether exposure to either an ‘ambiguous consumption’ prototype (no amount of alcohol specified) or a ‘small consumption’ prototype (‘small’ amount of alcohol specified) had an impact on prototype perceptions of, and willingness to use, small amounts of alcohol during pregnancy.
Parental assistance with children's emotion regulation (ER) is a form of emotion socialization behavior that has recently been operationalized with the development of the Parent Assistance with Child Emotion Regulation (PACER) questionnaire.
Digital mental health is changing the landscape of service delivery by addressing challenges associated with traditional therapy. However, practitioners’ use of these resources remains underexamined.
Listening to children and families about what is important to them when visiting Child Development Services (CDS) can provide valuable insights.