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News & Events

HBF Run for a Reason 2014

On Sunday May 25th, the 'I love someone with Rett syndrome' team participated in the annual HBF Run for a Reason.

People

Felicity Pheasant

Felicity Pheasant is a Project Officer for Embrace at The Kids Research Institute Australia.

Participate in CDKL5 Research

Participate in our CDKL5 research to help advance research outcomes in the CDKL5 research field by our children's health specialist researchers.

News & Events

8th World Congress on Rett syndrome

Thank you to all guests and participants of this year's 8th World Congress on Rett syndrome, which was held from May 13-17th, 2016 in Kazan, Russia.

Equipment available – portable/community based

Portable equipment is available to enable bedside and community-led research in rural and remote communities, including Indigenous communities where children are disproportionately affected by chronic respiratory conditions.

News & Events

Do you have the power?

Volunteers are needed for the upcoming camp for 11 and 12-year-olds living with Type 1 Diabetes.

News & Events

Smartphone donations

The Diabetes Research Team is requesting donations of old iPhones for a new study investigating the effect of real time CGM on every day diabetes management.

Participate in Research

AussieRett is the Australian Rett syndrome research study. We collect information on Australian individuals with Rett syndrome from both families and clinicians