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The Australian Rett Syndrome Study is based at The Kids Research Institute Australia located in Subiaco, Western Australia. This study was established in 1993.
Funded by the International Rett Syndrome Foundation, this international online database examines the clinical features and genetic characteristics.
One of the many reasons for setting up the International CDKL5 Disorder Database was to learn more about this condition.


With the help of clinicians and families who have children with Rett syndrome, our research aims to improve understanding of Rett syndrome.
