Search
Research
Barriers and Considerations for Diagnosing Rare Diseases in Indigenous PopulationsAdvances in omics and specifically genomic technologies are increasingly transforming rare disease diagnosis. However, the benefits of these advances are disproportionately experienced within and between populations, with Indigenous populations frequently experiencing diagnostic and therapeutic inequities. The International Rare Disease Research Consortium (IRDiRC) multi-stakeholder partnership has been advancing toward the vision of all people living with a rare disease receiving an accurate diagnosis, care, and available therapy within 1 year of coming to medical attention. In order to further progress toward this vision, IRDiRC has created a taskforce to explore the access barriers to diagnosis of rare genetic diseases faced by Indigenous peoples, with a view of developing recommendations to overcome them.
Research
The development of aboriginal brain injury coordinator positions: A culturally secure rehabilitation service initiative as part of a clinical trialBrain injury, resulting from stroke and traumatic brain injury, is a common occurrence in Australia, with Aboriginal people affected at a significant rate and impact felt by individuals, families and communities. Access to brain injury rehabilitation services for Aboriginal people is reported to be often limited, with very little support outside the hospital environment.
Research
Excess stroke incidence in young Aboriginal people in South Australia: Pooled results from two population-based studiesThe excess stroke incidence in Aboriginal South Australians appears substantial, especially in those aged <55 years
Research
Improving access to primary care for Aboriginal babies in Western Australia: Study protocol for a randomized controlled trialA population-based, stepped wedge, cluster randomized controlled trial of an enhanced model of early infant primary care
Research
Comparing risks of cerebral palsy in births between Australian Indigenous and non-Indigenous mothersIndigenous infants have a higher risk of CP than non-Indigenous infants, especially postneonatal CP.
Research
“Our culture, how it is to be us” — Listening to Aboriginal women about on Country urban birthingThe Birthing on Noongar Boodjar project Aboriginal women's data represents four generations of women's stories, experiences and expressions of childbearing
Research
Reduced forced vital capacity in Aboriginal Australians: Biology or missing evidence?This editorial article addresses chronic obstructive pulmonary disease and lung function testing in Aboriginal Australians.
Research
What we know about suicide prevention for Aboriginal and Torres Strait Islander peoplesThis fact sheet addresses what we currently know about suicide prevention for Aboriginal and Torres Strait Islander peoples.
Research
The Differential Influence of Contextual Risks on Psychosocial Functioning and Participation of Australian Aboriginal YouthMethodological issues and implications for interventions to support young Aboriginal people's adaptation are discussed.
Facilitate research interest & opportunities that involve Aboriginal families & communities and build the capacity and development of Institute researchers