A number of themes emerged from the qualitative data which included parents' views and concerns about the capacity of their young adult to adapt and…
Long-term survival was lower for Aboriginal children with congenital heart defects
Epilepsy is pervasive but not mandatory for the CDKL5 disorder, and genotype and functional abilities were related to seizure frequency
Although abilities were markedly impaired for the majority with the CDKL5 disorder, some females and a few males had better functional abilities
Explored Youth with Neuromuscular Disorders perceptions of health, health behaviors and healthcare engagement
Senior Research Fellow
Principal Research Fellow
Head, Child Disability
Improving the lives of children with a disability and their families sits at the core of our team.
Prevalence and determinants of sleep problems in Rett syndrome