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The social media application TikTok allows users to view and upload short-form videos. Recent evidence suggests it has significant potential for both industry and health promoters to influence public health behaviours. This protocol describes a standardised, replicable process for investigations that can be tailored to various areas of research interest, allowing comparison of content and features across public health topics.
Principal Research Fellow
PhD Candidate
Paradoxically, rare diseases are common, collectively affecting 6-10% of the population and have a huge impact on patients and families, health services,...
This study used video supplemented by parent report data to describe the gross motor profile in females with Rett syndrome (n=99) and to investigate...
This study describes the impact of having a sibling with Down syndrome or Rett syndrome using a questionnaire completed by parents.
The aims of this study were to compare the early and subsequent clinical courses of female subjects with Rett syndrome categorised by whether...
The goals were to compare the fracture incidence in Rett syndrome with that in the general population and to investigate the impact of genotype, epilepsy,...
Sleep problems are thought to occur commonly in Rett syndrome, but there has been little research on prevalence or natural history.
This paper describes the development of a video-based evaluation tool for use in Rett syndrome (RTT).