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Research Officer
Senior Research Officer
Head, Child Disability
Senior Research Fellow
Within the Child Disability Team Jess has contributed to research that aims to improve understanding and measurement of the communication of people with CDKL5 Deficiency Disorder (CDD) by conducting and analysing interviews with families.
Loss of hand function is a core feature of Rett syndrome. This article describes longitudinal hand function at 3 time points for 72 subjects participating...
Variation over time in medical conditions and health service utilization of children with Down syndrome.
The purpose of this work was to revise and clarify 2002 consensus criteria for the diagnosis of RTT in anticipation of treatment trials.
To investigate the prevalence, trends, and characteristics of maltreatment and assault related hospital admissions and deaths among children;
The etiology of autism spectrum disorders is unknown but there are claims of increasing prevalence in many countries.