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Meaningful change for people with Developmental and Epileptic Encephalopathy
Developmental and epileptic encephalopathy (DEE) conditions are rare, and most have a genetic cause.
Professor Helen Leonard
Principal Research Fellow
Research Advisor Application
Guide our sibling research!
Be a Research Advisor!
Guide our sibling research!
Rural Cancer Siblings
We want to hear from siblings living outside of Australian cities!
Sibling Support and Teen Talk Studies
Sibling Support and Teen Talk Studies form
Infographics
The visual representation of Teen Talk study findings
The CDKL5 Disorder
One of the many reasons for setting up the International CDKL5 Disorder Database was to learn more about this condition.