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Our team

Led by some of the top mental health researchers in Australia, Embrace brings together a network of researchers and partners to find new ways to help kids at the lowest times in their lives.

News & Events

Research at CliniKids

At CliniKids, it is important that the services we offer are informed by the children and families that utilise our services.

News & Events

Autism Month!

April is Autism Month and to mark the occasion, we’re transforming our reception desk in the clinic to an AMAZING wall for our families to contribute to.

News & Events

Frangipani Family Day 2023

CliniKids held Frangipani Family Day recently – an event organised to honour the wonderful contribution of its much loved and dearly missed colleague, the late Kate Sorensen.

Research

Microcephaly in Australian infants: A retrospective audit

The aim of this study was to describe clinical characteristics, outcomes and causes of microcephaly in children whose condition was identified within the first year of life.

Our People

Learn more about our people - the dedicated researchers and staff working to address Rett syndrome, CDKL5 and other related disorders.

Using a large international sample to investigate epilepsy in Rett syndrome

Using a large sample size, we investigated the relationships between epilepsy and genotype, and the impact of medications used on seizure management.

Longitudinal bone mineral content and density in Rett syndrome and their contributing factors

This study measured changes in bone density over time using dual energy x-ray absorptiometry (DEXA). Lean tissue or muscle mass (LTM) was also measured.

Seizures in Rett syndrome: an overview from a one-year calendar study

We collected information on a monthly basis on the patterns of seizures and medications of 162 girls in the Australian Rett Syndrome study over a calendar year.

Conceptualizing a quality of life framework for girls with Rett syndrome using qualitative methods

We interviewed 21 families with a daughter with Rett Syndrome about aspects of their daughters' lives that were satisfying or challenging to them.