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Research

Setonix Pharmaceuticals: Enhancing immuno-oncology with small molecule drugs

Setonix Pharmaceuticals aim to develop orally available immunotherapy drugs that are optimally effective with minimal side effects, improving outcomes for cancer patients.

New home

Empowering Youth Wellbeing Through the Arts. Learn how SEW-Arts supports the social and emotional wellbeing (SEWB) of young people through arts programs.

Research

Sibling Stories: Improving the mental health of siblings of trans youth

Some studies indicate siblings of transgender (trans) and gender diverse young people often experience negative mental health impacts such as anxiety and depression due to complicated familial, individual and social factors associated with having a trans sibling.

ActiveRett

Staying physically active is an important part of a healthy lifestyle. ActiveRett is a dedicated resource for helping families support their child with Rett syndrome to keep active.

How much activity is recommended?

Each family needs to select the appropriate types and levels of activity that suit their own individual needs and circumstances.

Participate in InterRett / MECP2 Duplication Research

Through InterRett we collect information on individuals with Rett syndrome on a global level. If you are a participant you can complete your questionnaire here.

News & Events

High Tea for Rett Syndome at Caversham House

Thanks for everyone who have contributed to and participated in this wonderful event to raise much needed funds to support Rett Syndrome research!

News & Events

The Silent Angel

Taylor is a remarkable young woman with Rett Syndrome who is leading an active country life with the support of her family and the local community.

ATOMIC Ears Study

We are looking for children to take part in an important study that will assess a new treatment designed to prevent ongoing ear infections in kids having grommet surgery.

Melody Study

The Kids Research Institute Australia is looking for healthy babies (born from 35 weeks of pregnancy onwards) to take part in an important study evaluating a new medication that may help prevent Respiratory Syncytial Virus (RSV) disease.