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We have recently developed recommendations to support clinical practice for gastro-intestinal disorders including growth and scoliosis in Rett syndrome.
The ARSS has a Consumer Reference Group to ensure family representation and input into issues relating to the design, management and output of the study.
News & Events
HBF Run for a Reason 2014On Sunday May 25th, the 'I love someone with Rett syndrome' team participated in the annual HBF Run for a Reason.
News & Events
"You can't stop loving them" - a grandmother's story about her granddaughter who has Rett syndromeYou can't stop loving them: the gift of a grandchild can sometimes be painful, writes Wendy Macklin.
News & Events
The Rett Syndrome Journey: Pathways to FollowOur InterRett team visited Geelong, Australia to attend the first ever Rett Syndrome Association of Australia national conference.
Research
Risk factors for low receptive vocabulary abilities in the preschool and early school years in the longitudinal study of Australian childrenReceptive vocabulary development is a component of the human language system that emerges in the first year of life and is characterised by onward expansion...
Research
Global, regional, and national levels of neonatal, infant, and under-5 mortality during 1990-2013We generated updated estimates of child mortality in various age groups for 188 countries from 1970 to 2013.
Research
The case for global investment in rheumatic heart-disease controlThe review built a case for extending simple and cost–effective measures to all countries. Had these recommendations been put into action, significant...
Research
Altered immunity and dendritic cell activity in the periphery of mice after long-term engraftment with bone marrow from ultraviolet-irradiated miceTo investigate the immune capabilities of peripheral tissue DCs generated in vivo from the BM of UV-irradiated mice, chimeric mice were established.
Research
Using a large international sample to investigate epilepsy in Rett syndromeThe aim of this study was to identify characteristics of epilepsy in Rett syndrome (RTT), and relationships between epilepsy and genotype.