Following on from the CHARGE Australasia 2024 Conference, we would like to invite:
- Siblings aged 18+ who have a brother or sister with CHARGE syndrome
- Parents (any age!)
To come together in an online discussion to:
- Explore ways in which research could be directed specifically to benefit siblings who have a brother or sister with CHARGE syndrome
- Discuss sibling unmet support needs, and generate ideas of how to address these needs
- Discuss ways to support parents in their role supporting siblings
Focus groups will be online and comprised of 4-5 participants. Sibling and parent discussions will be held separately, and you will be paid for your time.
To express your interest, email: siblings@telethonkids.org.au or complete the online form below.