Inviting expressions of interest for the INSPIRE Consumer Reference Group (CRG) of WA – a combined group for the BREATH and Aboriginal Children’s Excellent (ACE) Lung Health studies.
INSPIRE stands for INnovative Solutions and Partnerships for Indigenous Respiratory Excellence.
This is a group for parents of Aboriginal children who have, or have had lung sickness. The group wants to:
- Support the development of partnerships between families, researchers, The Kids and Perth Children’s Hospital.
- Give a family perspective to both medical and research aspects of lung sickness
- Improve the quality and relevance of healthcare and research through family involvement.
Key duties:
- Attend meetings every 4 months. (located in Perth, but teleconferencing available for regional and remote families)
- Give advice and expertise on family needs and views about research and health care
- Share information from the CRG to relevant community groups when needed
- Help contribute to and report on family participation activities
- Advise on language and content of study information sheets
- Provide feedback on the impact of research projects in communities and ways to do research well from a community perspective
- Share ideas on areas that you or your community would like the team to consider researching.
Support
- Free training will be provided for members on the role for the group
- The Terms of Reference is available and outlines the purpose and structure of the group.
CRG Chair
- The group is chaired by Ms Timeah Archer, with support provided by Mikayla Garstone and Erica Thompson from The Kids Research Institute Australia.