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Research

Comparison of stillbirth trends over two decades in Wales, United Kingdom and Western Australia: An international retrospective cohort study

Stillbirth is a critical public health issue worldwide. While the rates in high-income countries are relatively low, there are persistent between-country disparities. We compared stillbirth rates and trends in Wales and the State of Western Australia (WA), Australia, and provide insights into any differences.

Research

Connection to... Addressing Digital Inequities in Supporting the Well-Being of Young Indigenous Australians in the Wake of COVID-19

This article examines whether connection to digital technologies helps connect young Indigenous people in Australia to culture, community and country to support good mental health and well-being and protect against indirect and potentially long-term effects of COVID-19.

Research

Determinants of sleep problems in children with intellectual disability

Children with intellectual disabilities are more likely to experience sleep disorders of insomnia, excessive daytime sleepiness and sleep breathing disorders than typically developing children. The present study examined risk factors for these sleep disorders in 447 children (aged 5-18 years), diagnosed with an intellectual disability and comorbid autism spectrum disorder, cerebral palsy, Down syndrome or Rett syndrome. Primary caregivers reported on their child's sleep using the Sleep Disturbance Scale for Children (SDSC), as well as medical comorbidities and functional abilities.

News & Events

From Diagnosis to Consumer Representative – Danae’s journey to making a difference

Recognising the signs of type 1 diabetes (T1D) can be tricky. Often put down to growing pains, a virus or “something going around”, a diagnosis can take some time if children aren’t severely sick and attend an emergency department.

Research

Increasing incidence of invasive group A streptococcal disease in Western Australia, particularly among Indigenous people

The incidence of invasive GAS disease in WA increased between 2000 and 2018, particularly among Indigenous Australians. Mandatory notification of invasive GAS disease would therefore be appropriate. The social determinants of differences in incidence should be addressed, and other relevant host, pathogen, and health system factors investigated.

Research

Outcomes and endpoints reported in studies of pulmonary exacerbations in people with cystic fibrosis: A systematic review

There is no consensus about which outcomes should be evaluated in studies of pulmonary exacerbations in people with cystic fibrosis (CF). Outcomes used for evaluation should be meaningful; that is, they should capture how people feel, function or survive and be acknowledged as important to people with CF, or should be reliable surrogates of those outcomes. We aimed to summarise the outcomes and corresponding endpoints which have been reported in studies of pulmonary exacerbations, and to identify those which are most likely to be meaningful.

Research

Do rapid diagnostic methods improve antibiotic prescribing in paediatric bacteraemia?

Rapid blood culture pathogen identification facilitated by matrix-assisted laser desorption ionisation time-of-flight and GeneXpert has the potential to improve antibiotic prescribing. This study investigates the impact of these rapid diagnostics on the timeliness of effective and optimal antibiotic prescribing in paediatric patients with bacteraemia.

Research

DNA methylation and body mass index from birth to adolescence: meta-analyses of epigenome-wide association studies

DNA methylation has been shown to be associated with adiposity in adulthood. However, whether similar DNA methylation patterns are associated with childhood and adolescent body mass index (BMI) is largely unknown. More insight into this relationship at younger ages may have implications for future prevention of obesity and its related traits. We examined whether DNA methylation in cord blood and whole blood in childhood and adolescence was associated with BMI in the age range from 2 to 18 years using both cross-sectional and longitudinal models.

News & Events

WANdiab patient management system upgrade

We've updated our clinical diabetes patient management system to a new state-of-the art system that can access critical informtion in real-time during clinic. 

Research

What Influences Decision-Making for Cochlear Implantation in Adults? Exploring Barriers and Drivers From a Multistakeholder Perspective

To explore the factors influencing the uptake of cochlear implants in adults, determine the impact of each factor, and to conceptualize the journey to implantation from a multistakeholder perspective. Concept mapping was used to integrate input from multiple stakeholders, each with their own experience and expertise.

Research

Impact of a multimodal exercise program on tibial bone health in adolescents with Development Coordination Disorder: an examination of feasibility and potential efficacy

Developmental coordination disorder (DCD) compromises bone health purportedly due to lower levels of physical activity. The potential of an exercise intervention to improve bone health parameters in adolescents with DCD has not previously been studied. This study thus aimed to determine the impact of a multimodal exercise intervention on bone health in this population at-risk of secondary osteoporosis.

Research

Facing the Ethical Challenges: Consumer Involvement in COVID-19 Pandemic Research

Consumer involvement in clinical research is an essential component of a comprehensive response during emergent health challenges. During the COVID-19 pandemic, the moderation of research policies and regulation to facilitate research may raise ethical issues.

News & Events

Exercise intervention to improve mental health outcomes - Part two

Study: Developing an exercise intervention to improve mental health outcomes for adolescents with type 1 diabetes Participants needed for an online

News & Events

Congrats Dr Sabrina Binkowski

Congratulations to Dr Sabrina Binkowski from Rio Tinto Children's Diabetes Centre, who was awarded the ANZSPED research grant award of $20,000, at

News & Events

WA Government to support research providing early and equitable access to the best diabetes technology for all children newly diagnosed with type 1 diabetes

Researchers from the Rio Tinto Children’s Diabetes Centre, a JDRF Global Centre of Excellence, have been awarded funding through the WA Child Research Fund (WACRF) to undertake research that aims to remove barriers and provide access to the most effective diabetes technologies for all children newly

News & Events

JDRF Type One Summit

The Rio Tinto Children's Diabetes Centre were invited to attend this year's JDRF Type One Summit in Sydney where the T1D community came together to "share knowledge and gain strength and inspiration from others in the T1D community - JDRF Australia"

News & Events

DiabHQ and the patient portal

The Rio Tinto Children’s Diabetes Centre has recently commenced an exciting new project to integrate diabetes data from many different sources so that it can be used more effectively to help people living with diabetes. The DiabHQ project will bring together data that is currently housed in many sep

News & Events

Made with love

When two-year-old Clara first went onto the new Ypso HCL system, her mum Sarah found that the pump belt was just a little too big for her.

News & Events

Clinic Update August 2022

PCH Diabetes Service Update We have now returned to face-to-face care as we move past the peak of infections in the WA Community.

Dr Mary Abraham wins national diabetes research award

Congratulations to Dr Mary Abraham from the Rio Tinto Children's Diabetes Centre and Perth Children's Hospital, who has been awarded the prestigious Australian Diabetes Society (ADS) Lindsey Baudinet Rising Star Award in T1D Research.