Use of equipment and respite services and caregiver health among Australian families living with Rett syndrome

Authors:
Urbanowicz A.;Downs J.; Bebbington A.; Jacoby P.; Girdler S.; Leonard H..

Authors notes:
Research in Autism Spectrum Disorders. 2011; 5(2):722-732

Keywords:
Rett syndrome; Respite; Equipment; Maternal health; Maternal wellbeing; SF-12

Abstract
This study assessed factors that could influence equipment and respite services use among Australian families caring for a girl/woman with Rett syndrome and examined relationships between use of these resources and the health of female caregivers.