Authors:
Ager S, Downs J, Fyfe S, Leonard H
Authors notes:
Disability and Rehabilitation 2009; 31(23):1917-1924
Keywords:
Scoliosis, orthopaedic complication, Rett syndrome, parents, affected individuals, vital partners, clinical management, scoliosis, parental experiences, different management options
Abstract:
Scoliosis is the most common orthopaedic complication of Rett syndrome. Parents of affected individuals are vital partners in the clinical management of scoliosis and this study explored parental experiences of various aspects of different management options.